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Milestones Autism Resources

4853 Galaxy Parkway, Suite A
Warrensville Heights, OH 44128

Phone: (216) 464-7600

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KidsFirst Research Registry

The resources and information in the Milestones Autism Resources Center are meant to be a reference, and should not be considered comprehensive or an endorsement or recommendation of any providers, methodologies or services from any of the groups, agencies or companies listed. We urge you to make independent judgment when selecting a professional to assist you. We provide guiding questions to help you think through what is right for your situation.

Person: Jordan Lane
Phone: 216.368.0112
Agency: PAER @ Case Western Reserve University
Email: jxl2420@case.edu
Website: http://kidsfirst.stanford.edu/ICARE

KidsFirst is recruiting parents of children (all ages) diagnosed with autism to enroll in a research registry aimed at identifying similarities across children and establishing behavioral classification to better understand autism. At enrollment, they ask parents to answer a ten-minute survey which will guide future requests for information, such as more targeted follow up questions and possible genetic sampling.

The information you provide will help them translate findings into targeted approaches for therapy, care, and intervention. All information gathered will be strictly confidential, anonymized, and encrypted in our HIPAA-compliant repository.

There is no cost to participate and all correspondence is through the registry, email, and telephone. There are no in-person appointments. Case Western Reserve is partnered with the Hartwell Foundation and Stanford University to establish Northeast Ohio as a site in the KidsFirst Research Registry.

2024 Reach for the Stars Celebration THIS SPRING!

THURSDAY, APRIL 4 at 5:30 p.m. at Pinstripes in Beachwood -- benefits our valued free Autism Helpdesk!

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Need assistance? Let Milestones be your local guide.

Unsure of where to start? Contact our free Helpdesk with your questions, and we will do the research for you!

Visit milestones.org/helpdesk and complete an intake form.