autism advocacy

Awareness After April – What You Can Do For the Autism Community Year-Round

Autism Awareness Month is a great time to educate yourself about autism, spread awareness, and to support those impacted by autism. However, these efforts do not have to end when April does, and can still be very impactful throughout the year. Milestones has provided some effective ways in which you can participate in autism awareness and continue to support the autism community all year long.

1. Educate yourself – You may have heard of the phrase “Each one, teach one.” Once you learn information about autism, it would be a great duty to help others become more knowledgeable as well. It is also very important that when you talking to people that you are providing accurate and up-to-date information. As an educational organization, we can attest to knowing the importance of having accurate and evidence-based information about autism-related topics. One of the ways that you can educate yourself about autism is through online research. Be sure to check out our resource center  to discover more than 1,400 resources with a special focus on resources in Ohio.

2. Get Involved – Volunteer your time to further the mission of organizations who are dedicated to helping people on the spectrum. Many organizations heavily depend on volunteers as they can be a huge factor in making projects and events a success. It can also be a fun and meaningful activity to do with your loved ones, allowing you all to make a difference in your community together. Volunteering can be as simple as helping out with office work, providing special event assistance or serving on a planning committee. You can get started with Milestones, as we are always looking for volunteers year round.
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Ask the Expert – Awareness to Action: Building a Strong Voice Through Self-Advocacy

My name is Sondra Williams, I am a wife, mother, grandmother, national speaker, and advocate for myself and others. Lastly, I am Autistic. Autism does not define me; it describes only a part of me.

During Autism Awareness Month, I pause and reset my thoughts as I begin to digest what awareness means to me in regards to autism. Awareness has been around for many years now, so you would think it would be profoundly understood by now. Yet, that is far from my truth.

There are so many voices with various messages from “Defeat” and/or “Cure Autism,” to highlighting neurodiversity and able-istic viewpoints. I hear the terms over and over of high functioning versus low functioning, adding label upon label to define this complex disability or as some say difference.  So, autism awareness becomes a huge question left unanswered; what should I believe and what camp of thinking do I support?

As an Autistic adult who travels to teach and speak, I meet many teens and young adults who simply struggle in regards to self-awareness and self-advocacy. Many have no clue outside of the diagnostic label what autism is and how it affects them.  If one does not know how something affects them or have the vocabulary around their disability, how can we expect them to become great advocates? We must empower their voice through knowledge and teach them the vocabulary around their disability.

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Straight from the Source – Carly Nelson

As a speech-language pathologist in training, I recognize the importance of self-advocacy. As an Autistic* person and sister of another Autistic adult, I have seen firsthand how safety and happiness depend on it. I spent years watching my brother come home from school hurt, angry, and misunderstood. His self-advocacy, rather than being cherished and honed, was often ignored or even punished. The trauma he endured in these experiences, and my experiences learning to advocate for myself, while riddled with anxiety, have shaped my appreciation of the critical need to honor and promote self-advocacy.

My brother’s diagnostic process followed the usual timeline. My mother and the pediatrician noticed early developmental delays in areas of mobility and speech. He got his diagnosis by age 3 and was enrolled in early intervention. After school each day, I’d sit on the other side of the mirrored-window and watch various professionals work with him. My journey with autism has differed widely from the understood norm, but is not at all uncommon. In kindergarten, I was reading chapter books and already performing in the top of my class. My mother’s ongoing lament throughout my life was that I could be “so good at school, yet so difficult at home.” As it turns out, this holding-it-together-in-public-and-melting-down-at-home routine is common in people whose autism doesn’t present naturally. We have managed to appear “okay” when complete loss of control feels too unsafe. But doing so taxes our nervous systems heavily such that we pay for it later.

For most of my early life, it didn’t occur to anyone, myself included, that I might also be on the spectrum. At school, I was quiet, but quick to learn. At home, I was an unruly brat. My brother was probably the first to realize, though not consciously. We bonded with one another more deeply than with anyone else in this world. During family parties, we have always found where the other was hiding (or crying if we got too overwhelmed) and quietly kept each other company, an unspoken tradition of camaraderie. We would pick up each other’s stims and lift the mattress for each other to go under when we were struggling.

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