Helpdesk

Helpdesk: Top 10 Tips for Parents Attending Their First Milestones Conference

Milestones National Autism Conference June 14-15, 2018 Cleveland I-X CenterFirst time attending the Milestones National Autism Conference? We’re so excited to have you! Get ready for two days full of new knowledge, resources and friends. With 90 workshops and over 1,000 people in attendance, we know it can get pretty crazy but don’t fret! With a simple combo of preparation and participation, we promise you will walk away having gotten the most out of your experience. Check out the following tips on how to nail your first Milestones conference.

1) Review the Parent Track ahead of time to see what workshops are most appealing to you! You can also call our free autism Helpdesk to talk with a staff member who can make suggestions based on your child’s age, stage and ability.

2) Take advantage of our discounted family member rate. Register early to receive our Spring Special rate! Also, remember Milestones has scholarships available for parents. The application process is simple and quick!

3) Visit the Caregiver Relaxation Room. Visit the Caregiver Relaxation Room, presented by Hickman & Lowder Co., LPA. This special room offers a calm and relaxing area just for parents and caregivers of individuals with autism. Well deserved!

4) Attend our amazing lunch sessions and walk away with a friend. Everyone around you at the conference has a connection to autism and is looking for the same supports as you. Use your time as a chance to network with peers and leave with new contacts in your community.

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Helpdesk: Talking to Your Child About Autism

Many families wonder when and how to approach sharing with their child that they have an autism diagnosis. There are no clear rules on how or when this talk should occur, but there are a few things you should consider:

-Autism is a lifelong condition and may unfortunately impact how others react towards your child. Generally, a person with a diagnosis of autism is already aware of their differences.

-A diagnosis is simply a description of features that are currently present – it may feel more real when a diagnosis is provided, but the symptoms did not appear simply because the “magic words” were spoken.

-A diagnosis can provide you with the language and a framework to consider using to meet any additional areas of need that are present. For example, your child can learn to advocate their needs to their teacher – “I have autism, I feel overwhelmed when there is a lot of noise in the classroom.”

-I, as well as many self-advocates that I have communicated with, have expressed that learning of our autism diagnosis was a relief – it provided us with a clear way of communicating to others what our differences are, which supported us with then advocating for any supports that we may need.

-I am of the opinion that my autism is nothing to be ashamed of. Learning about my autism provided me with insight into who I am so I could best utilize my strengths.

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Strike It Big Raises Nearly $70,000 for Local Autism Community

This month, Milestones Autism Resources’ annual Strike it Big Bowling Extravaganza returned for its sixth year. On Sunday, March 11th, over 80 teams comprised of more than 400 bowlers gathered at Spins Bowl in Independence to bowl in support of the local autism community. As a result of the tremendous efforts of our sponsors, bowlers, and volunteers, the event raised nearly $70,000 for Milestones’ free autism Helpdesk, a service which allows families to contact Milestones’ professional staff for personal guidance and local resources.

Participants included eight school districts and colleges, plus community members and business owners from all across Cleveland.

The fun-filled day also included balloon twisting, face painting, a raffle, a photo booth and a special appearance by Cleveland Browns mascot Chomps.

Milestones would like to thank everyone who helped make this year’s fundraiser a wonderful success.

If you haven’t had the chance to donate, please consider making a contribution here.

Helpdesk Q&A: Summer Planning 101

Now is the time to set your sights on the summer ahead and to prepare for a change of pace. With the inconsistency in schedule that summer brings, many families with loved ones on the spectrum encounter challenges during this transition and contact the Milestones Helpdesk for guidance. Here are a few common questions we hear:

1.) My loved one has a hard time adjusting to a summer schedule. How can I make this transition easier for them?
If you know what schedule changes to expect, start prepping up to a month out from their last day of school. Start creating a visual schedule for the summer with added summer icons (swimming, camp, travel destinations, museums, etc.). Get your loved one’s teachers or providers involved in helping prep for this summer schedule as well.

Long, sunny days often have us longing for less of a schedule. Some slack is okay, but continue to provide a structure for each day that will keep your loved one regulated.

2.) I am an elementary school teacher – how can I help my students and their families enjoy the summer while also keeping next school year in mind?
As a teacher, you can provide information to families to help prevent academic slide. Remind families that taking 15-30 minutes a day to review in the summer will help keep their student on track for the following school year. Pick just a few skills that will be the most helpful and share them with your students’ parents. If appropriate, discuss extended school year (ESY) options.

Summer gives lots of opportunities for learning in different ways. Give your students options to read books of their choice, encourage creative writing, or teach them how to work on math while baking or cooking.

3.) My child enjoys spending time in their room but this often leads to them isolating themselves in the summer. How can I introduce them to new social opportunities?
Many times, families are concerned about their children hiding out in their room all summer. Get input from all members of your family and plan activities that intrigue everyone in some way. Also, think about ways you can give limits for games, computer time, and other screen entertainment to keep your child from expecting unlimited play time. For example, allow 1-2 hours of preferred screen time for an equal amount of family, outside or learning time. Consider setting up a screen time contract prior to summer so everyone knows the rules and consequences ahead of time.

To get them interested in more social activities with the rest of the family, encourage your loved one with a small reward.

4.) Where are some helpful places I can find a list of autism-friendly summer events in my community?
The Summer and Beyond Fair every February is put on by the Educational Service Center of Cuyahoga County. There will be countless camps and other ESY options represented there for families to learn about.

If you are not local to Northeast Ohio or unable to make it, ESC of Cuyahoga County will publish a full list of all the programs in attendance shortly after the fair so you can review it right at home.

Another great source for information about summer options is through your current providers.  Many SLPs, OTs, PTs, mental health and ABA therapists will often run summer camps to work on specific skills.

For non-camp options, check out Milestones’ calendar and the calendars of museums, zoos, science centers to see if they have a sensory friendly day, a sensory room option, or other accommodations for your loved one during the summer.

5.) How can I get my loved one to try a new activity?
Consider what they enjoy doing and find a similar activity. Introduce them to this new activity in small steps so they are not overwhelmed. For example, if they like swimming and you want to try a water park, consider starting out at a local splash pad. The splash pad will introduce them to the noise level and being around a small crowd of people. There are many splash pads that are free or low-cost throughout Northeast Ohio.

6.) We’re going on vacation! Now what?
Milestones’ travel tool kit is here to help. The tool kit provides information about family-friendly destinations, medical and safety concerns, social stories, and helpful links about air and road travel. It’s a one-stop shop to help with your vacation planning so your family trip can be as smooth as possible.

7.) How can families find some added one-on-one support for the summer?
It’s best to plan ahead as much as the family is able. Think about your budget, then identify what days, times, and level of support your loved one will need for the summer. Sometimes, it is wise to reach out to local colleges for students who are majoring in special education, psychology, social work or similar fields that are available and want to gain experience. Use our guiding questions when interviewing potential providers.

8.) I see your national conference is in June. Tell me more…
The Milestones National Autism Conference draws family members, professionals, and individuals on the spectrum from all over the country. With over 80 evidence-based sessions taught by experts in the field, it is a one of a kind event that allows the entire autism community to learn together. Offering CEUs in 11 disciplines this year, the conference also serves as a hub for professional growth for all. Register before February 28th and save!  We can’t wait to learn with you.

Don’t forget that Milestones’ website provides resources, tool kits and guiding questions. Be sure to download our free resources as you make your plans for summer. Our coaching staff is always here to help you- so don’t hesitate to call our free Helpdesk or come in for a consultation.

 

Haley Dunn works with individuals with ASD as Milestones’ Teen/Adult Coordinator to help them transition to adulthood. She has experience working with individuals with developmental disabilities and ASD to transition from school to work, as well as providing mental health counseling services. Haley has a deep passion for connecting people to their community, whether it is through employment, volunteering, or life enrichment activities.

hdunn@milestones.org
(216) 464-7600 x115

 

 

Helpdesk Q&A: Staying on Track in 2018

As families look to the year ahead, it is natural to ask yourself how you can better ensure a more productive and positive year for your loved one on the spectrum. Teen and Adult Coordinator Haley Dunn knows the feeling, and has answered some common questions she gets this time of year as parents assess their goals for the new year.

1) How do I write a new goal?
Think about goals for yourself or your loved one in multiple settings- home, school, career and personal. Pick a few things you would like to work on in each setting. Set goals that are short and long-term to help you feel accomplished as you progress through your list.

If you are a student writing academic goals or social goals, it can be helpful for you to focus on something personal. Goals that you really want to accomplish are more likely to come to fruition versus a goal someone sets for you.

Academic goal examples:
– Improving math test scores by studying an extra hour per week
– Improving spelling ability by writing the word an extra 3 times more than the homework states

Social goal examples:
– I will sit with a new person this month and ask them a question about their interests
– I will go out to a school social event this year.

2) Why is it important to write down my goals?
If you are seeing your goals on a regular basis you are more likely to continue to work towards them. So write them down and put them somewhere where you can see them! Type out the goals and post them in common areas of your home. Use a journal that you carry with you. Make a dream board that you put in your room with pictures and quotes that inspire you as you work toward your goal.

How you write the goal is equally important in setting an encouraging tone and putting yourself in the right mind set to start working.  Use phrases such as, “I will improve” versus “Stop making mistakes.”

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