Milestones Autism Conference
Amanda Buzo was a young lawyer starting her career in special needs estate planning when she first heard about Milestones.
In her interactions with clients, she kept coming across the organization’s name.
“Amazing resources! Invaluable tools! You have to go to the conference!” her clients would tell her. Wanting to find out more, Amanda attended her first Milestones conference and was blown away.
“It was such a phenomenal event,” she says. “The environment was so positive and everyone was supportive of each other. It was very inspiring.”
Tell us about your first experience with Milestones.
I was an exhibitor at my very first conference in 2015. As an exhibitor, you’re on your feet all day and it can be very tiring. But the Milestones staff was very attentive and supportive, making sure we were comfortable and had everything we needed to make our experience a success.
Lauren (Daughtrey) introduced me to a board member and helped me make connections with the professional community. Milestones went out of their way to connect me, and as a result, I developed a lot of relationships with fellow exhibitors, conference attendees and the community. I had such a good experience that I wanted to be more involved.
How has Milestones helped you professionally?
Working with Milestones has given the Community Fund Management Foundation credibility and a seat at the table.
You are executive director at Community Fund Management Foundation. Tell us more about your organization.
We are a non-profit that establishes trusts for individuals with disabilities with money provided by the individuals or their families. We help families provide for a person’s needs in a way that helps safeguard their loved one’s eligibility for government benefits like Medicaid. We have 2,200 trusts in 82 of 88 counties in Ohio, which amount to about $93 million in assets. We have one of the largest pooled trusts in the US.
Your relationship with Milestones has evolved over the years. You are now a speaker, exhibitor and donor. Tell us more about your contributions.
I love having the opportunity to reach individuals and families. As a special needs estate planning attorney and as a parent, you’re always seeking out information. I want to make the information readable and something that families can digest. I love all the ways Milestones helps us educate the community.
I did a co-presentation at the conference about STABLE accounts, which are accounts for individuals with disabilities that are generally not counted as a resource when determining Medicaid or Supplemental Security Income eligibility. It was a great opportunity to help equip families and help them make informed decisions for their future.
How has Milestones helped you personally?
Though I don’t have a personal connection to autism, as a parent of a young child, I am always looking for the best information and recommendations from experts. Milestones has a vast number of resources on their website. And the network of professionals, teachers, therapists and doctors that they have is truly exceptional.
Also, I think Milestones has done a wonderful job in helping families connect, to not feel alone, and to know there are others walking that journey with you. And so many inspiring stories! I’m always in awe of what other families have accomplished and overcome. I can apply those lessons to my own life.
Why is Milestones important to the community?
Milestones makes itself relevant to the community. For one, it has an amazing website. The resources, tools and networks- I think everything that they’ve done behind the scenes is and their desire to help families is incredible.
What advice would you give someone about Milestones?
I would tell them to contact Milestones because they follow through. I was talking recently with a young mother of twins. One of her children had been diagnosed with autism so I told her about the Milestones conference. She lived about an hour from Cleveland, but I encouraged her to attend. She wasn’t aware of the organization but after I told her about it she was excited to find out more.
What do you see for the future?
I look forward to continuing our involvement with Milestones at the next conference. It’s a fabulous organization with a strong purpose and mission. We have some exciting ideas for 2018. I see us continuing to support the organization in perpetuity.
Often we are inclined to hiding the most honest parts of ourselves – but author, animal science professor & autism advocate Temple Grandin is refreshingly unrestrained with sharing hers.
It’s what the 69-year-old scientist, TIME 100 Most Influential People and TED Global Speaker has been doing for more than 40 years. As a high-functioning person with autism, Grandin, who will kick-off our 15th Annual Autism Conference at Playhouse Square on June 14 with A Special Evening with Temple Grandin, has been able to articulate her extraordinary life experiences with exceptional insight.
As someone who “lives in both worlds” – the autistic and the neurotypical – she has spent almost her entire life raising awareness and promoting acceptance of individuals on the autism spectrum. Thanks to Grandin’s efforts, we are breaking down barriers to embrace, and celebrate, neurodiversity.
“Different kinds of minds are good at different kinds of things,” she said during a recent phone interview from Florida, where she was invited to speak to top corporate executives. “That’s why we need all kinds of minds working together to solve problems.”
Grandin is known for taking strong positions on autism and the education of children with autism. She advocates for early intervention, including the training of teachers to direct specific fixations of the child. What’s new on the autism front and what Grandin is currently advocating is helping children transition into adulthood.
“We’ve made much progress in the early intervention part, but now I want to see kids go out and be successful as adults,” she says. “We need to get young people interested in hands-on skills. I’m very concerned about how the schools have taken out these hands-on classes – like home economics and wood shop, auto shop, art and theater and music.”
Kids need job skills training before they go out into the world, Grandin says. Give them a trade so they can enter the workforce and get a job that won’t be replaced by artificial intelligence.
“They are not learning how to work; they need to start as early as middle school,” she recommends. “Volunteer at their church, work in a clothing store or an ice cream shop. Expose them to something they might find an interest in. My goal for young people: get two real summer jobs before graduation.”
Another issue of great concern, says Grandin, is too much screen time.
“Kids today are totally addicted to video games,” she says. “We need to wean them off slowly. And then give them choices. I see too many smart kids getting addicted to video games. They need to get outside. Start working. Get them involved in things. Get them out with other kids.”
Sometimes, part of the problem can lie with parents, she says.
“There are certain parents who are afraid to let go,” Grandin says. “There’s a tendency to do too much for their children. But kids need to be stretched. Not thrown into the deep end of the pool, but stretched and given choices. My mother was always pushing me to do different things. When I was 13 I started working for a seamstress. At 15, I was cleaning horse stalls.”
Born on August 29, 1947 in Boston, Massachusetts, Temple Grandin was diagnosed with autism (considered a form of brain damage at the time) at age 2. Grandin’s mother, Eustacia Cutler (the actress, singer and granddaughter of the co-inventor for the autopilot aviation system, John Coleman Purves), worked tirelessly to find the best care and instruction for her daughter. Having the financial means to hire the world’s leading specialists, Eustacia held on to the hope of finding an alternative to institutionalization.
“I can remember the frustration of not being able to talk – I couldn’t get my words out,” Grandin has said about her early childhood. “My speech came in gradually. Words at a time. When I was a little kid I was very autistic. Non-verbal. Screaming. Rocking. That’s the kind of kid they just put away in an institution.”
Grandin’s treatments included extensive speech therapy and an emphasis on turn taking and playing games, which helped to draw out and reinforce her communicative abilities. As a result, she began to speak at the age of 4. “I had good mentors like my mother and my science teacher,” she says. “I’m fortunate to have had supportive mentors from elementary school and onward. It’s why I can’t emphasize enough the importance of young children getting early intervention.”
High school, on the other hand, was a whole other story. “Absolute worst part of my life,” she says. Social interactions remained difficult during adolescence. Peers regularly teased Grandin for her verbal tics like repetitive speech. Having had enough, she once threw a book at a fellow classmate who taunted her, resulting in Grandin’s expulsion from school.
Despite these challenges, she was able to make considerable accomplishments in academia. Grandin received her bachelor’s degree in psychology from Franklin Pierce College in New Hampshire, a master’s degree in animal science from Arizona State University and went on to earn a PhD in animal science from the University of Illinois at Urbana-Champaign. Today, she serves as Professor of Animal Science at Colorado State University.
“People ask me, ‘How did you end up working in the cattle industry?'” she says. “It’s because I was exposed to it as a teenager. When I was 15, I was cleaning horse stalls every single day. I was proud of the fact that I ran a horse barn.”
That exposure to horses eventually unlocked a lifelong passion for animals. For more than four decades, Grandin has dedicated her life to animal science and animal welfare. In fact, her extensive research is credited with transforming the beef industry. Over half the cattle in North America are handled in humane livestock systems Grandin created, including the development of a center track conveyor restrainer system for holding cattle. Globally, Grandin’s designs are used by the largest beef producers and processors. She is also the author or co-author of more than 60 peer reviewed scientific papers on a variety of other animal behavior subjects.
In addition to her contributions to animal science, Grandin was one of the first individuals on the spectrum to publicly share insights from her personal experience. She became well-known beyond the autistic community following an appearance in Oliver Sacks’ 1995 book, An Anthropologist on Mars, the title of which is derived from Grandin’s description of how she feels in social settings (including hypersensitivity to noise and an extreme sensitivity to detail and environmental change).
“Read Thinking in Pictures if you want to understand my mind,” Grandin says, referring to her critically-acclaimed 1995 book which explains how autism shapes her daily life. “Everything in my mind works like Google – set for the image function.”
Grandin details three types of minds in her book, The Autistic Brain.
“The Pattern Thinker would be a mathematician, for example,” she says. “The Word Thinker might be the kid who likes history. And then you’ve got Visual Thinkers, like me.”
She credits her visual search engine-type of mind with helping her understand animals and design livestock systems. She compares her memory to full-length movies that play in her head, which she has the ability to replay at will, allowing her to notice small details. Grandin argues that her contributions to the field of animal science would not have been possible without the insights attributed to her autism.
“I get most excited when things that I do work,” Grandin says of her contributions. “Like when a mother of an autistic child tells me her child went to college because of me, or when I see that a meat packing plant has really improved. Or a rancher tells me that one of my systems works really well. When I’m making real change in the real world, that makes me happy.”
[Opening photos: Rosalie Winard]